Guest Name janet zahm
Homepage URL: don't have one yet
From: florida
Comments: Your site has saved my sanity, to know that someone else has "been there--done that" as far as being misdiagnosed means so much to me. thank you for being there. This is just about tha best thing that has ever happened to me [besides my kids] I'll be back as ofter as you let me, I've learned so much---------be back later
Sign Time: September 21 1999 at 21:57:42
Guest Name Sandra Ward
Homepage URL:
From: Palmdale, California
Comments: I've been long searching for someone who knows what I have gone through. The whole problem is that people are not aware of this disease and even doctors tend to want to tell you that you should go see a head doctor cause of all the symptoms you give them. I will forever have this battle with Graves' Disease as my now doctor tells me, so I'm trying to find out more about it's treatments.
Sign Time: September 21 1999 at 17:36:26
Guest Name Tobi
Homepage URL: Tobi's Northwest Camp Page
From: Washington State
Comments: Hi. I searched "Graves Disease" for a friend and your link was first on my list. Thank you for sharing your story, and so much information. Tobi
Sign Time: September 20 1999 at 18:40:18
Guest Name Laura Dawson
Homepage URL:
From: Elk River, Minnesota
Comments: You need to add excruciating headaches to your list of symptoms. I had them for over a year, almost 24 hours a day. I survived because I had to. My therapist insisted I see my doctor about them and it's what caused my doctor to check for a thyroid problem. It turned out to be Grave's Disease. Besides the headaches, I had a good chunk of the other symptoms, but didn't know why. When I finally got to an Endo, he told me my heart beat was so fast that if I was 20 or 30 years older I probably would have a heart attack! When I took the radioactive iodine they told me there would be no side effects. WRONG! I was sick for almost a month. I went from 120 to 104 in that month because I couldn't keep any food down. It took them a year and a half to get the levels regulated. I thank God my doctor found the problem the first time I went to him about it.
Sign Time: September 16 1999 at 16:20:06
Guest Name PENNY WAHL
Homepage URL: none
From: shirley,new york
Comments: THIS IS THE SECOND TIME I HAVE VISITED YOUR HOME PAGE,I ALSO HAVE GRAVES DISEASE AND I AM JUST LEARNING HOW TO DEAL WITH IT NOW,WHEN I READ YOUR STORY I FELT LIKE IT WAS ME TALKING,I ALSO HAVE THE GOITER,MY TEST RESULTS WERE VERY SIMILAR AND NOW WE ARE TRYING RADIOACTIVE IODINE THIS MONTH AND WE WILL SEE WHAT HAPPENS WITH THIS OD COURSE THERE ARE NO GUARANTEES,MY DR IS JUST TRYING TO GET MY THYROID TO WORK PROPERLY WITHIN NORMAL LEVELS AND THEN I WILL PROBABLY BE ON MEDICATION THE REST OF MY LIFE,WE HAVE OUR GOOD DAYS AND BAD DAYS,JUST ALWAYS REMEMBER THERE ARE OTHER PEOPLE THAT ARE WORSE OFF THAN US.GOD BLESS YOU
Sign Time: September 14 1999 at 20:46:44
Guest Name B. C.
Homepage URL:
From: Maryland
Comments: My sister just had Orbital Decompression surgery on her eyes for Grave's Disease. It has not been a pleasant experience, so far. While the surgery seems to be successful, post-surgery side effects have been troubling. She is looking to correspond with people who have had this type of surgery and compare notes on success, recovery period and side effects. It's easy to find information on the Net about this type of surgery, but nearly immpossible to find post-surgery from people who have had the operation done. If you can help, write to her at ccasteen@hotmail.com
Sign Time: September 14 1999 at 20:37:10
Guest Name T. Hobbis
Homepage URL: n/a
From: British Columbia
Comments: I'm 3 months pregnant and was told today that I'm suffering from a Hyper thyroid. The dr mentioned Graves Disease so I thought I'd look it up. Since I'm pregnant, I can't do anything about my current situation, but it was interesting finding out more about thyroid disease.
Sign Time: September 13 1999 at 23:32:28
Guest Name Judy Den Bleyker
Homepage URL:
From: Holland, MI
Comments: I'm preparing to have surgery on my eyes for this scourge.....thanks for keeping the public informed about the realities of this condition...good luck to you.
Sign Time: September 12 1999 at 21:19:20
Guest Name Chrissy
Homepage URL:
From: New Jersey
Comments: This is my second signing--I want to add more info. I'm 28 and was diagnosed in March. I also have the skin condition vitilago.....anyone else? I'm still on PTU's twice a day. I'm looking to corresponde with other sufferers. Please feel free to contact me. I really enjoyed this site. It was very informative, considering that I've been in the dark for most of this. Best Wishes to All.
Sign Time: September 12 1999 at 07:08:01
Guest Name Chrissy
Homepage URL:
From: New Jersey
Comments: I'm a 28 year old who was diagnosed in March. I suspect I was suffering for years, but no one told me. I really enjoyed your site. Thanks and Best Wishes to You.
Sign Time: September 12 1999 at 06:39:30
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